Mandatory Rest Period: MOVED!

2004-11-26

One month

So, Its been one month today since I received my diagnosis. I can say that I feel good about keeping myself healing. I'm glad I haven't gone back to work yet. I think that I've come a long way since this attack started and I feel like my body it still trying to heal itself albeit slow for my taste. I've talked to a few co-workers who all keep asking when I'm coming back! Its a little hard to keep saying I don't really know but it's true. I really don't know.

Next week I go back to the MS clinic with my big long list of questions for them. Every couple days I seem to have a new question about this or that. The one thing I will tell them is that I will decline participating in a clinical trial. I just don't feel like its in my best interests to do one. I want to heal from this attack and continue on with my life. If I do a clinical trial I will have medication in me (or placebo, I know) and I would have to contend with driving in to the clinic (hour or so each way) every week and have possible side effects. I guess my rationale is that I am not being prescribed meds now, I am healong on my own so I dont feel comfy being the guinea pig for them when I don't need to take any.

4 Comments:

  • Kim,

    I am so with you on the clinical trials. When Erik was having so many problems, we call it "the exacerbation" we considered it. But now, I just can't see him doing that. I appreciate that people are willing to try drugs on themselves, but we have a very watch and see approach. As excited as we are about Tysabri, I want to see how people do on it in the coming year. (It will take that long for our insurance to catch up regardless!)

    Keep hanging in there, and don't try to rush things as far as going back to work. Looks to me like you have a great attitude, and that will serve you well. I am praying for you and wishing you good health soon.

    Much like Erik I don't know much about benign MS. I thought it took time before they could diagnose that? Would you mind blogging a little about what your doctor told you about the Benign MS and how s/he came to that conclusion? I have heard talk of a blood test, but I did not think it was "out" yet.

    By Blogger Eriksgirl, at 9:06 p.m.  

  • Hi Kim, I've been blog surfing tonight and have been led to you, Dave, and Erik. My daughter, Cyndy, was diagnosed in 1995 with relapsing remitting MS. Come on over and visit my blog. Blessings to you.

    By Blogger Rita, at 10:00 p.m.  

  • Whats your URL Rita?

    By Blogger Kim, at 10:12 p.m.  

  • Hi Kim

    I had dizziness problems and am now taking Serc (beta-histine) - haven't had a dizzy spell in over a year.

    I am with you on the tastebuds issue - I have a permanent sense of taste and smell issue - the smell and taste of certain foods has become altered after a major sinus infection. No more chocolate or coffee.

    My thoughts are with you,

    from
    Joanne H. (Tod's researcher buddy)

    By Anonymous Anonymous, at 10:18 p.m.  

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